Frequently Asked Questions

What is me/cfs?

Myalgic encephalomyelitis (ME) or myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), is a complex chronic disease that presents with symptoms in multiple body systems. The World Health Organization classifies ME/CFS as a neurological disease.

HOW MANY PEOPLE ARE AFFECTED?

An estimated 15-30 million people live with the disease worldwide. Because ME/CFS is an invisible illness, very few resources have been allocated for research and treatment, despite the disease’s prevalence. It’s is a relapsing and remitting disease, with symptoms fluctuating over weeks, months and even years.

WHAT CAUSES ME/CFS?

ME/CFS is a common consequence of viruses, with 10-12 percent of those with an infection going on to develop the disease.

What are the symptoms of ME/CFS?

Symptoms of ME/CFS include cognitive impairment, severe fatigue, unrefreshing sleep, constant low-grade fevers, a worsening of symptoms after minor exertion, swollen lymph glands, insomnia and unusual cardiac patterns, among other symptoms.

What is it like to live with ME/CFS?

People with ME/CFS experience a substantial loss of physical and/or cognitive function. The average person with ME/CFS scores as more disabled on quality of life surveys than those with multiple sclerosis, stroke, diabetes, renal failure, lung disease, heart failure, and cancer.